• Lyn Smith posted an update 5 years, 8 months ago

    Where is everyone? I am having trouble getting into the group – keeps coming up ”you dont have sufficient permission etc” Is there something wrong? Dont even know how I got through this time.
    Hope everyone is well.
    Take care
    Lyn

    • rick replied 5 years, 8 months ago · ·

      Yeah we’ve been upgrading and there have been some glitches. Hope things are better now.

  • Lyn Smith posted an update 5 years, 8 months ago

    Details of our latest podcast if anyone would like to listen in. Would be interested in feedback from overseas listeners. Featured this week a review of Journey through cancer.

    Podbean (listen online/download) – http://candles.podbean.com/

    iTunes (listen online/download) – …[Read more]

  • Lyn Smith posted an update 5 years, 8 months ago

    Would like to read the full article Rick but am unable to access it without subscribing. Is it possible to post the article on here or would that breach copyrights?
    Thanks
    Lyn

  • Lyn Smith posted an update 5 years, 8 months ago

    Hi everyone – I would like to ask for your ideas about what would encourage a male to attend a support group and especially a male carer support group.
    Any ideas or experiences appreciated.
    Take care everyone
    Lyn

    • rick replied 5 years, 8 months ago · ·

      Oooh. Tough one. Have it same time/different room from a women’s caregiver group? Let the women caregivers get the guys there. We guys dont think we need help or can learn from these groups.

  • My life – that was the one big thing cancer never took away from me. Even though it tried very hard . The list of things I have had the chance to do since diagnosis continually grows. I never imagined for one minute that I would ever be able to speak in public – now [...]

  • Once again Rick you have come up with a really good topic and Karen has made some very valid points. Most people, I think, would know the many risk factors and possible causes of cancer, smoking, nutrition, overweight, exposure to sun etc. and I also think that it must be extremely hard for the medical [...]

  • Another great quote Rick! As an almost 13 year survivor of CUP and, like Linda, also a support group facilitator, I tend to see things through both personal eyes, and those of the members of the group. Fear of recurrence is probably the one thing that mostly stops people from fully enjoying life regardless of [...]

  • Lyn Smith posted an update: 5 years, 10 months ago

    Hi everyone – just want to say hello, hope that everyone is well, and share some news from OZ.
    Australia lost a wonderful man this week, in Jim Stynes, an Irishman who came to Australia to chase his dream of playing AFL football.
    Jim was married with 2 young children. He sadly lost his battle with brain cancer this week.
    Away from football Jim…[Read more]

  • Lyn Smith posted an update: 5 years, 10 months ago

    Wow Greg – I should have read your next post before replying to your first post – what an amazing and inspiring story.
    Everyone should have a look at the link you posted.
    Lyn

  • Lyn Smith posted an update in the group Group logo of SurvivorsSurvivors: 5 years, 10 months ago

    Hi Greg – I agree that staying positive can be hard – especially when everyone it seems, it telling you to do just that. I got to a point where I thought if one more person tells me to be positive I would scream. After all, would you respond, “oh its okay I really like being negative – its how I deal with stuff”. Perhaps focus really is the…[Read more]

  • Lyn Smith posted on the forum topic Pets and our journey in the group Group logo of SurvivorsSurvivors: 5 years, 10 months ago

    I have to be totally honest here and say that I have never really been an “animal” person, even though as a child we always had dogs, birds, a turtle, fish etc in our home. My role with cancer families has however shown me some amazing bonds that exist between humans and their animal companions. [...]

  • Lyn Smith posted on the forum topic A little too much help? in the group Group logo of SurvivorsSurvivors: 5 years, 10 months ago

    Like you Rick I too am much more comfortable on the giving rather than the receiving end. I found it really difficult and at times annoying and frustrating when I was having treatment that every time I went to do something, someone would step in and say “Its okay, I’ll take care of that for [...]

  • What a great topic Rick! Made me think back to when I was diagnosed and why I had immediate trust in the team of health care professionals I was referred to. I think it was a combination of factors. The general surgeon I had for my first lot of surgery then referred me to his [...]

  • A story I heard some years ago at a support group.
    A lady had gone in to hospital to have bowel cancer surgery and she was aware that she would have a colostomy bag when she awoke. Her husband was waiting for her when she arrived back in the ward. He was eager to give her a present all beautifully wrapped. The nurses were keen to see what the…[Read more]

  • Lyn Smith posted on the forum topic Love is in the air. in the group Group logo of CaregiversCaregivers: 5 years, 11 months ago

    Having been involved with a support group for 10 years I have seen and heard both sides of the coin. For me personally, my marriage ended, according to my ex, because “cancer changed you”. Maybe it did but it certainly wasnt the reason for the demise of our 32year marriage. I have seen some people [...]

  • Lyn Smith posted on the forum topic Genetic risk of cancer in the group Group logo of SurvivorsSurvivors: 5 years, 11 months ago

    I think people have a right to know whatever information is available that may impact on them. This gives them the opportunity and empowers them to make informed decisions. Too often decisions are made by someone else about what we need to know or what is right for us without any consultation with us. Even [...]

  • Lyn Smith posted an update in the group Group logo of SurvivorsSurvivors: 5 years, 11 months ago

    Hi everyone and greetings from Australia
    Thought I would share my story – a bit of light reading for those interested!
    My story began Christmas 1998 when I discovered a small lump in my groin while showering. I did not think a lot about it but remembered to ask my dr at the next visit. I was told it was “probably” a small hernia but not really…[Read more]

    • Congratulations on your 13 years since your cancer diagnosis. I have treated a couple people like yourself (very similarly) both of whom also continue to do well. So maybe the numbers are better than we think. I can truly appreciate the sting in your story having worked with others in a similar situation. Interestingly, I don’t feel that same…[Read more]

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